Merrill and Roberta Simon and Family

                                                            Our life as parents to special needs children has never been easy. To be very honest, it is usually hard, still we have stayed committed to the process. Still I find myself wondering why, why we must advocate for every single thing the children need....not even want....just need. School is really never easy. It is nearly an unbelievable task to say on top of each and every child to make sure that they are doing their best and that at the same time their IEPs are being followed.  Medical, you find the best doctor for them and she retires...in due fairness to her, she had been with our kids for twenty years. Then you find a new doctor and I'll be a monkey's uncle, she up and quits. Oh sure, she has her reasons and my guess is they are good, but you must once again find a new do...

Merrill and I are so blessed to have people that love us and care for us. We do not get away often, but this time each year we have come to look forward to and enjoy our yearly trip to Lake Tahoe. We have our little cabin in the woods at the most wonderful bed and breakfast. we have come often that the owners and wonderful staff ask about the kids and share our story with other visitors. Better yet, they all know we are going to do nearly nothing. It is perfect for us. We spend extra time sleeping, time just doing a few things we want to do, and face each day with nearly no plans. I think this time away mentally prepares us for the next year ahead. we worry about the caregivers...will they still be speaking to us when we get back home....lol. It is one thing to know the kind of life we live, it is another to live it for four or five days.