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Trying To Find Peace

                                                           

Our life as parents to special needs children has never been easy. To be very honest, it is usually hard, still we have stayed committed to the process. Still I find myself wondering why, why we must advocate for every single thing the children need....not even want....just need. School is really never easy. It is nearly an unbelievable task to say on top of each and every child to make sure that they are doing their best and that at the same time their IEPs are being followed. 

Medical, you find the best doctor for them and she retires...in due fairness to her, she had been with our kids for twenty years. Then you find a new doctor and I'll be a monkey's uncle, she up and quits. Oh sure, she has her reasons and my guess is they are good, but you must once again find a new doctor. We did and now we are spinning our wheels....looks as if I need to get off my backside....hahaha...and find a new one again.

Medical supplies...that is what pushed my buttons today. Diapers...88 total for a month, for a total care child who is 100% not able to use the toilet.  You do the math, that is not even three diaper changes in a twenty four hour period.  I am tired of it all.  What is better, putting a child in an institution that cost thousands upon thousands of dollars a month...or giving them the things they need to be in a loving and permanent home with a family who wants them? Of course we want our children, but many of them need diapers.

So, tomorrow I will be on the phone, fighting really, to get the most basic of needs for the children. I want to keep their dignity in tact. I want them to be presentable to all. They have that right, just like you and me.




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