Skip to main content

Trying To Find Peace

                                                           

Our life as parents to special needs children has never been easy. To be very honest, it is usually hard, still we have stayed committed to the process. Still I find myself wondering why, why we must advocate for every single thing the children need....not even want....just need. School is really never easy. It is nearly an unbelievable task to say on top of each and every child to make sure that they are doing their best and that at the same time their IEPs are being followed. 

Medical, you find the best doctor for them and she retires...in due fairness to her, she had been with our kids for twenty years. Then you find a new doctor and I'll be a monkey's uncle, she up and quits. Oh sure, she has her reasons and my guess is they are good, but you must once again find a new doctor. We did and now we are spinning our wheels....looks as if I need to get off my backside....hahaha...and find a new one again.

Medical supplies...that is what pushed my buttons today. Diapers...88 total for a month, for a total care child who is 100% not able to use the toilet.  You do the math, that is not even three diaper changes in a twenty four hour period.  I am tired of it all.  What is better, putting a child in an institution that cost thousands upon thousands of dollars a month...or giving them the things they need to be in a loving and permanent home with a family who wants them? Of course we want our children, but many of them need diapers.

So, tomorrow I will be on the phone, fighting really, to get the most basic of needs for the children. I want to keep their dignity in tact. I want them to be presentable to all. They have that right, just like you and me.




Comments

Post a Comment

Popular posts from this blog

PROUD DAY TO BE PARENTS :o)

I am not too sure that it gets much better than this at this stage of life. I wanted to post this yesterday, but I just ran out of time. Merrill and I received a letter informing us that LisaMarie was in the second grade math Olympics at school. Now this in and of itself is a huge accomplishment. Only the top five students from each class were chosen. So Merrill took off and I got a babysitter for MacGyver. Off we went. Now I am a little sadden to say that we did not really expect much to happen. We felt it an honor that LisaMarie had made it this far. We got there a little early, got a good seat and sat back to enjoy the competition. Oh my, let me tell you we were on the edge of our seats after about three rounds. LisaMarie was faster than we even knew she could be. She was confident, poised and all together in control, not like her parents sitting out in the crowd. Maybe it helps to be the only girl at home with so many boys, you tend to have it more together than most....LOL. Roun...
27 comments
Read more

TOTALLY AMAZING NEWS

WOW, first of all, I am in shock with the email that I have received. It is unreal that someone even thinks this highly about this family. We see us as a mom and a dad to many children...that is true....but something this wonderful...well, I am not sure about that. Rather than try to explain it, here are excerpts from the email.... The nationwide famous and wealthy PEW Foundation contacted us at Sierra Association of Foster Families.. they asked us to give them info on a family in Nevada who has adopted children and who is AN OUTSTANDING ADOPTIVE FAMILY in our state.. I wrote the nomination about you two.. and your family WHEN you win.. you will be invited ( i'm sure all expenses paid) to Capital Hill to receive the CONGRESSIONAL COALITION ADOPTION ANGEL AWARD and a big dinner with the politicians including maybe... First Lady Laura Bush..so.. you are nominated per us at SAFF... tell your children.. put it on your blog..to us the Merrill Simon Family is the OUTSTANDING ADOPTIVE FA...
33 comments
Read more

JUNE 30, 1978

HAPPY 30th ANNIVERSARY!!!! How does one even begin to express the joy that I feel in my heart and soul for being blessed to have been married to the most wonderful man for 30 years? The bottom line, I can't Anything I write here is a feeble attempt to try to convey what is in my heart. My cup truly runneth over. My wishes, that both of my parents were alive to see this day. My daddy came close, my mom not so. They had their doubts about Merrill and in the end they both knew that he was all that I ever really needed and in him I could really have everything I ever dreamed of. How does one really reflect over the past 30 years of life. Life in and of itself is just amazing. We all go through up and downs. We all face day to day challenges that at times we are not sure we will ride it out. Many times we lose the battles, but in the end we really win the war. We have had to say goodbye to so many people that we loved and cherished. Some of those went in a proper time frame, many of tho...
30 comments
Read more